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●NIH Studies |
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Sept 17, 06:
The National Institutes of Health has launched 3 studies looking at aspects of
autism. They are designed to address:
- Potential different subtypes of autism spectrum disorders and related
treatments;
- The effectiveness of using the antibiotic minocycline, which has been
found to be effective in managing changes in the immune response that cause
inflammation in the brain.
- The widespread but unproven theory that autism may be treated
successfully by chelation therapy, which seeks to remove heavy metals from
the blood. This practice is based on the belief that many cases of
autism were caused by exposure to thimerosol, a mercury-based preservative
previously used in childhood vaccines.
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●Chapel
Hill Autism Links Underrated |
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Reorganized since the last time it was reviewed. A treasure trove of
useful information with links to many, many other sites.
Includes timely news, information about major therapies, even
special clothing. Mixture of resources, research, and
vendors. |
| Web link: http://www.teacch.com/welcome.html
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●National
Institute of Mental Health |
| Online
version of available pamphlet, this is an extremely thorough and
well-written compendium of information covering many aspects of
Autistic Spectrum Disorder for families and clinicians looking
for a broad overview. Details information on diagnosis,
characteristics and needs at different ages assessment, school
services, diet, and treatments. |
| Web link: http://www.nimh.nih.gov/publicat/autism.cfm
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●O.A.S.I.S. - On-line Asperger's Syndrome Information and Support |
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O.A.S.I.S. (On-line Asperger's Syndrome Information and
Support). Still one of the most up to date and complete
resources for information on Asperger's Syndromes and Autistic
Spectrum Disorders. |
| Web link: http://www.udel.edu/bkirby/asperger |
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●Stanford
University - Glossary of terms |
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Surprisingly helpful but short list of terms relating to autism
and proband studies. Also lists the meaning of various
statistical terms and test instruments that might be referenced
in articles on autism and related disorders. |
| Web link: http://aarr.stanford.edu/glossary.htm |
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●Stanford
University - Autistic Traits in the General Population, Twin
Study (Constantino, 2003) |
| Recent
research has indicated that autism is not a discrete disorder
and that family members of autistic probands have an increased
likelihood of exhibiting autistic symptoms with a wide range of
severity, often below the threshold for a doctor to make a
diagnosis of autism spectrum disorder. (more >>) |
| Web link: http://aarr.stanford.edu/GENETICS/Constantino.htm |
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●Yale Child
Study Center |
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Yale Child Study
Center autism and Asperger's link. Research and articles by
Drs. Fred Volkmar and Ami Klin. Provides timely and
comprehensive information. Be sure to check out the FAQ page. |
| Web link:
http://info.med.yale.edu/chldstdy/autism/index.html
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Wrong Planet |
| Good
for both families and indivdiuals with autistic spectrum
disorders. Facilities online communication between members
via "blogs." Check out the poetry section -- very
interesting! -- BG. "WrongPlanet.net is a web community designed for individuals with
Asperger's Syndrome, Autism, and other PDDs. We provide a forum,
where members can communicate with each other, an article
section, where members may read and submit essays or how-to
guides about various subjects, and a chatroom for real-time
communication with other Aspies." |
| Web link: http://www.wrongplanet.net/index.php
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Computers and Technology
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Children's Digital Media
Center |
| The
CDMC unites a national community of scholars, researchers,
educators, policy-makers, and industry professionals in a
community whose goal is to improve the media environment in
which children live and learn. The web site provides tools for
networking, disseminating information, and discussing important
developments in research on children and media and in design of
media for children. Be sure to check out the video game
reviews at
on the site. |
| Web link: http://www.digital-kids.net/index.php |
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ISAAC (Internet
System for Assessing Autistic Children) |
| This is
a web-based application for administering and managing health
research projects/studies and the associated data.
Designed for researchers, it claims to simplify the process of
developing data entry, data validation, and data edit
forms/templates. ISAAC has a growing lists of available tools,
or they will help you develop one (Note: I have not
personally tried this service). |
| Web link: http://www.autismtools.org/index.cfm
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Drug
Information
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Drug
Information (Teens) - "Stop Drugs.org" |
| Drug
information from the California Department of Justice. Not as
well organized and lacks a search function. But, has useful
information on drugs and resources |
| Web link: http://stopdrugs.org
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Education Tools
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●Educator's
Desktop |
| The Educator's
Reference Desk builds on over a quarter century of experience
providing resources and services to the education community.
From the Information Institute of Syracuse, the people who
created AskERIC, the Gateway to Educational Materials, and the
Virtual Reference Desk, the Educator's Reference Desk provides
resources on. 2,000+ lesson plans, 3,000+ links to online
education information, and 200+ question archive responses. |
| Web link:
http://www.eduref.org |
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●Special
Education Resources on the Internet (SERI) |
| A collection of
Internet accessible information resources of interest to those
involved in the fields related to Special Education. This
collection exists in order to make on-line Special Education
resources more easily and readily available in one location. |
| Web link:
http://seriweb.com |
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Learning Disabilities
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●LD Online |
| Wide range of
information available on LD, ADHD, and related disorders,
including
nonverbal learning disorders. Has interesting
features, such as "kid's artwork." Events and conferences
calendar,
national and
state by state (scroll down to find your state) resource
list |
| Web link: http://www.ldonline.org/abcs_info/articles-info.html |
| For Information about Non-Verbal
Learning Disabilities, click
here |
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Mental Retardation and
Pervasive
Developmental Disorders
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●AAMD |
| Wide range of
information available on mental retardation, including
AAMR definition. Readers should be aware that there
are somewhat different criteria for educational situations and
that in additional to the AAMR definition, there are DSM-IV and
ICD-9 and ICD-10 definitions. For a historical review and
detailed accounting of these different definitions,
click here or visit the Department of Psychology at the
University of Alabama Web site:
http://www.uab.edu/cogdev/index.htm (Please note:
this article contains valuable information about mental
retardation, however the versions of many psychological tests
referenced and the edition of Dr. Sattler's book are not
current). |
| Web link: http://www.aamr.org/ |
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●Univ
ofAlabama Cognitive Development Lab |
| Useful articles
about how children with mental retardation learn and understand.
Fairly technical. |
| Web link: http://www.uab.edu/cogdev/mr.htm |
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●Boston Children's Hospital |
| Excellent searchable
information. For PDD, check out
this site at the hospital. |
| Web link: http://www.childrenshospital.org/ |
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Non-Verbal
Learning Disabilities
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Non-Verbal Learning
Disabilities Association |
| NLDA is a non-profit
corporation dedicated to research, education, and advocacy for
nonverbal learning disorders. |
| Web link:
http://www.nlda.org |
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NLDLine |
| Educating the
caregivers and associates of individuals with NLD is the prime
goal of this website; next is the desire to network those
interested in NLD. |
| Web link:
http://www.nldline.com
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O.A.S.I.S.
Nonverbal
Learning Disorders Page |
| Extremely
comprehensive review, covering diagnostic features, assessment,
and service deliver issues, especially about accommodations in
schools. |
| Weblink:
http://www.udel.edu/bkirby/asperger/NLD_SueThompson.html |
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School Inclusion
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Inclusion Article from Wisconsin Education Association Council |
| Provides definitions
and information about inclusion. Reviews relevant some of
the landmark cases addressing this issue. |
| Web link:
http://www.weac.org/resource/june96/speced.htm
or
click
here |
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Testing and Assessment
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About
Psychological Tests |
| From
the American Psychological Association, Frequently Asked
Questions about tests, procedures, and how to access more
information. |
| Web link:
http://www.apa.org/science/faq-findtests.html |
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Requesting
an IEE for testing and FAAs, Case examples, Information about
Psychological Tests |
| Broad
ranging 28 page resource. From
Rene Folse, PhD, JD, Handout: Psychological and
Educational Tests for Special Education Students |
| Web link:
http://www.apa.org/science/faq-findtests.html
PDF
Version |
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Requesting
an IEE for testing |
| Letter dated
February 2004 from the California Office of Special Education
Programs to Alice D. Parker, Ed.D., Assistant Superintendent,
California Department of Education on the topic of IEE's,
examiner qualifications, and district policies. |
| Web link:
Resources/requesting_an_iee.htm |
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